CARES (Congenital Adrenal Hyperplasia Research, Education & Support) Foundation
CARES is a nonprofit organization that supports research on and education about congenital adrenal hyperplasia (CAH). CARES provides the latest resources available to families and individuals with CAH and strives to increase awareness of CAH in the health care community.
Cushing’s Support and Research Foundation (CSRF)
CSRF’s mission is to provide information and support for Cushing’s disease and Cushing’s syndrome patients and their families; to increase awareness in the medical community and the general public about Cushing’s disease and Cushing’s syndrome; and to be a resource for information and support to health care professionals.
The CSRF Cushing’s Fact Sheet provides information on causes, symptoms, diagnosis, treatment, and research.
EndocrineWeb’s goal is to provide patients with accurate and current information about endocrine disorders. In straightforward language, it explains the causes and symptoms of these disorders and how they can be treated.
GIST Support International
This all-volunteer group includes patients with gastrointestinal stromal tumor (GIST) cancer, family members, friends, and interested professionals. The e-mail distribution list has 1,500 subscribers who form an online community to share information about GIST treatment and to support each other in living with GIST.
Hormone Health Network: Adrenal Disorders
This page links to fact sheets and patient guides about adrenal incidentaloma, primary aldosteronism, Cushing syndrome, adrenal insufficiency, and congenital adrenal hyperplasia.